Caroline Lily’s Journey: Appreciating yesterday

Sunday, January 13, 2013

Appreciating yesterday

I can finally watch videos of Caroline as an infant and smile. I no longer think of our first year with Caroline as some kind of delusion. I used to feel like we had lived that entire period under false assumptions. How could I have been so foolish? I blamed myself..and I blamed life.

I still feel a little sorrow when I watch those older videos. But I can also appreciate the sweetness and the joy. Those moments are still part of Caroline's history.

Here is a short compilation of some of my favorite videos.

This is Caroline today (being her usual cute self). Her personality and spirit have not changed.

Pictures from this past week.

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About Caroline Lily

Caroline was born in January 2010. She is a bright and sweet little girl with a great sense of humor. She is a bit shy at first, but she loves to make new friends.

Rett Syndrome prevents Caroline from expressing herself and moving the way she wants to. The disorder, however, doesn't affect Caroline's intelligence or her ability to love. She is an affectionate and sweet little girl. She says so much with her eyes, and is very observant and engaged. She understands everything we say to her, even though she struggles to communicate back to us.

Caroline is not to be defined by her missed milestones, but by her strength and sweet spirit.

What is Rett Syndrome?

Rett Syndrome (RTT) is a rare and debilitating neurodevelopmental disorder that mainly affects girls and robs them of their ability to use their hands, talk, and walk. Girls with RTT develop normally for the first 6-18 months before they lose these skills and begin repetitive hand movements such as wringing, clapping, or mouthing. RTT also often brings a wide range of serious medical complications including issues with chewing and swallowing, seizures, abnormal breathing, as well as gastro-instestinal and heart problems.