Caroline Lily’s Journey: We took Caroline to a Yo Gabba Gabba concert!

Sunday, February 3, 2013

We took Caroline to a Yo Gabba Gabba concert!

Like most kids her age, Caroline has favorite shows and music. Right now, she's all about Yo Gabba Gabba. We've introduced her to various movies and songs, but nothing lifts her spirits (or grabs her attention!) like YGG.

We took Caroline to see Yo Gabba Gabba Live this weekend. The look on her face was priceless. When the show began, she looked at us like "wait a minute, what's going on here?" She was just so tickled! Mike and I couldn't stop looking at her face. She enjoyed the entire show. She was so focused. Her body was even relaxed and free from her regular involuntary movements.

Hearing Caroline laugh whenever she really enjoys something fills me up with happiness and hope. Sweet moments, however, can also carry some level of sorrow. I often find myself desperately wanting to hear what she's really thinking. So I end up asking her questions she can't answer. "What's so funny, Caroline?" "Why does Plex make you laugh so much?" "What's your favorite song?" She often looks up at me and vocalizes with great enthusiasm. I respond with "oh, really?" or "yeah? that's awesome!" And I feel awkward and guilty about it. But I don't want to not ask her questions anymore. I don't want to stop talking to her like she's a typical kid. I fear she will soon realize that I am faking understanding what she's trying to say. I can only find hope in the possibility that she will one day communicate autonomously. Yes and No can only take you so far. And so I try my best to just enjoy the moment and live in the present. (or maybe just ignore what is too difficult to face?)

We sang along to all the songs! haha! (Caroline loves it when we sing "her" songs)

This is Caroline's reaction when the characters appeared on stage. Priceless.

She brought along Muno and Brobee to the concert. She has all five characters, but I explained to her that she could only bring two along. She used her yes/no cards to pick them out.

Dancing with daddy's help.

Caroline LOVED the show!

Intermission

We got accessible seating for Caroline. She had a great view of the show.

Caroline wore her Yo Gabba Gabba Vans shoes. She smiles whenever she sees them.

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2 comments:

LizFebruary 7, 2013 at 3:07 PM
Hello! We too have taken Jessica to see her favourite show live (which is "In The Night Garden")and we have very similar pictures of her looking completely amazed, especially when she met one of the main characters back stage- it was hilarious to watch her! Glad Caroline had such a good time - I love her shoes! Liz x
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About Caroline Lily

Caroline was born in January 2010. She is a bright and sweet little girl with a great sense of humor. She is a bit shy at first, but she loves to make new friends.

Rett Syndrome prevents Caroline from expressing herself and moving the way she wants to. The disorder, however, doesn't affect Caroline's intelligence or her ability to love. She is an affectionate and sweet little girl. She says so much with her eyes, and is very observant and engaged. She understands everything we say to her, even though she struggles to communicate back to us.

Caroline is not to be defined by her missed milestones, but by her strength and sweet spirit.

What is Rett Syndrome?

Rett Syndrome (RTT) is a rare and debilitating neurodevelopmental disorder that mainly affects girls and robs them of their ability to use their hands, talk, and walk. Girls with RTT develop normally for the first 6-18 months before they lose these skills and begin repetitive hand movements such as wringing, clapping, or mouthing. RTT also often brings a wide range of serious medical complications including issues with chewing and swallowing, seizures, abnormal breathing, as well as gastro-instestinal and heart problems.