Saturday, June 22, 2013

Bittersweet moments

Some moments bring up feelings of happiness and sadness at the exact same time.

Caroline's teacher generously shared a bunch of sweet pictures from this past school year. The pictures revealed how much Caroline enjoys going to school. She's learning alongside other kids, she's included in every activity, and she's always part of the group. Seeing Caroline so engaged and happy at school made heart swell with pride and love.

I was also suddenly struck by her disability. I think I forget about it sometimes. And I couldn't help but notice that Caroline is the only student in a wheelchair. She's the only one who requires medical equipment to help her stand. She needs hand over hand assistance for both work and playtime.

Caroline will always be the girl who can't speak...the girl who requires help with every aspect of living. Caroline's vulnerability terrifies me. I can only hope that every person who comes in contact with her has a good heart and an open mind.

I wish for Caroline to always be treated with dignity, fairness, and kindness.

Caroline enjoying a show at school. I love that she's very much part of the group. 

One of Caroline's school therapists is helping Caroline play with a baby doll with hand over hand assistance.  

Thursday, June 13, 2013

Caroline watches her shows...A LOT (so what?)

Caroline watches several hours of Yo Gabba Gabba every single day. Her eyes are glued to the screen for the entirety of each episode. Her infectious giggles and laughter make us so happy that she has something she is able to enjoy this much. And yes, we pretty much let her watch as much as she wants. We realize this habit may raise a few eyebrows, but I think most people with some sense of compassion know to set judgement aside (or better yet, completely withhold judgment when it comes to our choices).

Below are pictures of Caroline enjoying Yo Gabba Gabba  
Watching with friends is the best

Monday, June 10, 2013

Caroline says "don't!"

I wanted to share a little update about Caroline and her eye-gaze computer. She's rocking it!

She learns the symbols pretty quickly so we keep adding new words. The symbols are also getting smaller to accommodate the additional vocabulary. She's successfully adapted to all these challenges.

I have a funny story. In the last couple of weeks, Caroline learned the symbols for "you" and "don't." Now, she uses them together almost every time I wipe her face or hold her face to minimize her involuntary movements (so that she can accurately target the symbols with her eyes). She even gives me a little grunt before she communicates "YOU DON'T!"

Point taken!