Meet Caroline

Caroline was diagnosed with Rett Syndrome (RTT) in June 2011 when she was 17 months old. Rett Syndrome is a rare neurological disorder that mainly affects girls and interferes with the ability to use their hands, talk, and walk. Caroline may not be able to do most activities without assistance, but she is full of love and energy. She is smart and understands everything you tell her. Caroline uses an eye gaze speech device to communicate, and she also uses her eyes to “point” to choices in front of her. Rett Syndrome’s most debilitating symptom is apraxia so the harder Caroline tries to do something, the harder it is for her to make her body do it.

Caroline brings us incredible joy and has given real meaning to the concept of unconditional love.The sweet moments outweigh the sad ones. And nothing is taken for granted.